Lyme disease and the extremists.

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There’s this dark area where sick people aren’t being believed or listened to and it’s not only causing fear but it’s causing insane conspiracy theories and wild accusations.

Lyme is real, the CDC and doctors everywhere agree on it. They don’t believe in chronic Lyme though, and they say¬† that after the first round of medication you are completely healed. As someone who has had the first round of medicine let me tell you, it wasn’t enough, and had I been given more treatment right away I probably would be well, but instead I was given time for that infection to spread. I had to find more treatment in different ways and because it got so bad I had to learn about other ways to support my body that might not be traditional (I talked about real medicine and fake medicine here). It’s been a hard road, but some doctors still stand by the fact I was well after the first round of treatment. It’s the same thing¬† they have told countless others who are still very much sick. The worse they get the more they make them spend on tests trying to find something else, or worse tell them it’s in their heads.

Of course people go nutty, but the level of distrust doesn’t just lead to sick people, it has lead to something else entirely.

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Lyme Disease: Updates and the idea of staying sick for good.

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My doctor and I had a conversation the other day about my Lyme disease, and how I need to be prepared to be on some type of treatment for the rest of my life, even if it was something small, like a pill a day. He said that he’s pretty positive that he can get me to the point that I feel healthy again, but told me that Lyme bacteria often comes back, and consistently fighting it is probably the only way I can continue without a terrible relapse that takes me back to where I started.

Hearing something like that, even when you knew it was possible, kind of makes you step back. It makes you quiver for a second and thing, “oh, I’m never getting rid of this.” It makes you realize that your life will never go back to what it was before you got sick.

It’s disheartening to say the least, and it’s really easy to focus on that rather than to focus on the other part, the part where he said that he can get me to the point I feel healthy again even if I am on a small amount of treatment. It makes you overlook the word small in front of treatment. When I took a moment I realized that and when I did I tried to readjust my attitude. I’ve talked about my current relationship with Lyme before, about how I’ve made peace now that I’m well enough to live my life, but still am desperately wishing I could finish the process.

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